I guess my sister found it on the Craigs list and Scott just saw it for the first time today. His cousin brought it over and we managed to get Scott down the stairs to try it out. Next thing I knew they were heading for McDonalds for breakfast. I'm not used to being alone in my house. Watching him reminded me of his first steps when he was a baby. I'm nervous because of traffic, but his older cousin is with him.
You should have seen the look on his face when he realized he could get himself over there. Delight!

When Scott woke up this morning after I had come in from apt. hunting, he came out to the parlor, then sat on the couch and started crying really bad. Of course I went over and hugged him and he talked about dreaming he could walk and run again. He said he hates living like this. I tried everything in the book to help him see past the moment and he finally calmed down. So I went to do a few things around the house and when I asked him what he wanted to eat he told me he was on a food strike until he could get some of the experimental drugs he has been hearing about. He was quite angry and it was directed at me. I got angry also and told him that wouldn't solve anything. But he is stubborn and didn't eat anything today.

I'm calling his docs.tomorrow. They might as well get used to hearing from me because I can't handle this all by myself.

If I just had a few thousand dollars I could change our living arrangements to a first floor apt and his electric wheelchair is in the works. Between looking for appropriate living conditions, the volunteering for MDA and all the specialist, well its getting to me. I'm ok when scott is but right now I think he is remembering the Charles River walk and seeing all the kids playing in the grass and running around and for all the positive involved in helping MDA I guess the day had it's drawbacks too.

I'll say a very intense prayer tonight. Oh Well...

and it was funny. Made me curious so I checked out a little bit about Rome. I have a personna there, Mesalia Maximus, but I havn't used her because I don't know much about Rome or Latin. Maybe if I do enough reading I'll develop her and her homesite.

I started reading articles again. That generally puts me in the "space" I need to be in. I'm going to re-up on my subscription tomorrow. Waiting for a windfall of good fortune so I can move this family to a first floor apt.

Dont have much room for another group or much time either. Sorry to hear about losing your kitty. I had to go to my home page and make sure mine was still there. I'm attached too. Stop by and have a peek. She's at the top of the page.

I've had her since yesterday at 1:00 pm. If I have to listen to Barney one more time ill rip my hair out of my head. I'm counting the minutes. My daughter is from my first marriage. She's 27. And they have women having babies at 60? They should be psychiatrically evaluated and monitored by home help. I'm 50 and this is all I can take.
I just wanted her to recover from her hangover before she took charge of the little one. I told her aspirin and Vitamin B and hurry cause Im taking some myself!

A lot has been going wrong lately--I havn't been on AW like I used to be. I have to take care of real life. But I've come out of the dumps and using all my mental power to make the best of each situation. When I have the time to relax I'll be here.

#1son has muscular dystrophy--so rare that the MDA wont accept him as a member so he could have priviledges like a motorized wheelchair. His arms work but theyh are too weak to navigate by himself, in a average chair.

Now- get this - My other son, who is sixteen, has been in residential care for 2 months and I have just found out that apart of his mental problems, he has a disease as well. It's called Celiac Disease. The administration and the doctor who performed the test where they go sdown the throat to look at the stomach showed a very irritated esophogus and blood in the stomach. This could be the cause of the mental symptoms, including schiszophenia (excuse the spelling] which he has been diagnosed with. Also mood swings depression,bi-polar, edema and possible shortened life span. Now maybe i"m making a lot out of what could happen [carcenoma was mentioned frequently] but my son with MD just started with the edema and his feet are swollen 3 times their size. So far the meds are not working. And this celiac disease also causes bad rashes on certain parts of the body. My 20 year old - his back is covered with a rash.
I have a 17 year old son who is also living in a residential school for 6 years now - part of his problem is autisim (border line) and aspergers (mild).Autism is one of the possibilties of this disease. Short term memory. and again bi-polar. Their father died 11 years ago of lung cancer. Their uncle died (fathers brother) died of throat cancer, their other uncle again on dads side died of lung cancer 5 years ago. Their father, grandfather on dads side, died 30 years ago of lung cancer. And here and there in this present disease I read carsonoma and possiblby a shorter life span. Both have curvature of the spine.

Needless to say there are many people out there smarter than me. If anyone has ideas they would be apreciated.

Another bad day......

It's ugly, nobody visits and as far as I can tell that goes for other personna's as well. It doesn't seem to be much of a priviledge unless I'm missing something.

I am back at it with coding and experimenting till I can afford to improve my equip. with extras. Does anybody use their room? Why can't I get it another color?

Returned it and upgraded to a more expensive one. My finances are taking a beating. It took all day to pick up the new one and get it set up. Well, it's faster. It's kind of good that the Decenalia is more involved with the old timers who have memories, because I havn't been very involved in the last 2 weeks. I've checked in and read a lot of post, enjoying the memories they talk about, learning how AW got started. But I have an Irish celebration to prepare for and it's time to get down to business.